Tuesday, November 5, 2019

Carter - Muscular Dystrophy -

Scott's son, Daniel, and DIL, Autumn, have 3 beautiful children. 2 girls and 1 boy. Their son, Carter, has Muscular Dystrophy. A debilitating genetic neuro-muscular disease, degenerative, passed through the mother's genes to typically sons. Autumn has a brother and 2 other nephews with MD, as well as an uncle.

Carter, smart, sassy, cute, and strong. So far he has avoided heart complications, yet has had 2 other major surgeries in his young life; he's 15, and has had his craniofacial surgery, Achilles tendon surgery on both legs, and this week he will surgery number 3 - rods placed in his back to permanently straighten terrible scoliosis.

Strong people, amazing family, great support, and I ache for them. Carter has been home from school most of the year because of his pain and weakness (Can you imagine carrying a backpack, walking down a hall to class, not being able to fully extend your limbs, and still trying to be 15? Tough.) This surgery will be a success, and he should be back to school, rather than packets, in January.

Genetic disorders - and the choices that come along with them, as well as the repercussions - including stress and monetary cost, are terrible. And these days, while many can't be cured, at least they can be tamed.

Love you, Carter! God bless you, your family, surgeons, and your caregivers.

July, 2018



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