I have a 16 year old grandson who has MD. He's a beautiful boy, and he is carrying a heavy load, as are his parents. To be "normal" is tough enough for anyone who wants to not stand out in a crowd, but to be "normal" when your body is not cooperating, is difficult. Defining self is hard hard hard, and accepting our life's journey - as "different" has to be difficult.
His parents are amazing - he is just their son, yet they are fiercely protective as well as being advocates for his disability as well as his normalness.
This blog post definitely puts a different perspective on dis-ability. Take a read.
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