Being a part of the Living Beyond Breast Cancer has been very healing. Helping others - that's what I do best, whether as a mother, grandmother, friend, teacher, or confidante. They have posted another of my writings on their blog; this time about anniversaries. If you choose to read, please look at the comments as well. You've heard my story many times, but to read what others share is touching. I hope, in some way, what I have to say will help others. That is my goal.
Speaking of reaching out - Scott and I will begin volunteering as Spiritual Care Volunteers at the Intermountain Healthcare hospitals in January. I am excited to be back in that role - rather be the caregiver than the care-recipient! And my position as a recipient will help me be a more compassionate giver.
Happy Haunting - Boo Ya! And thank God Pinktober is almost over!
Thursday, October 31, 2013
Wednesday, October 30, 2013
Oct. 30 - Gilda Radner -
From LBBC.org:
Breast Cancer Awareness Month Recommended Reading,
Part I: “Butterfly Wishes on Wings” and “It’s Always Something”
As Breast Cancer Awareness Month (BCAM) 2013 comes to a close, our dedicated staff, volunteers and contributors want to share recommended reading that will inspire you, make you laugh and, above all, help you realize you are not alone.First up, regular blog contributor Ronda Walker Weaver.
It’s Always Something: Twentieth Anniversary Edition (Written by Gilda Radner, published by Simon & Schuster, 2009).
During my chemo treatments, a neighbor knocked on my door, handed me a book, and said, “I found this at the library sale. I hope you’re not offended. She died, but I thought you might enjoy reading it.”
Radner’s “It’s Always Something” is intensely honest. Giving a glimpse into her life as an original member of “Saturday Night Live,” her marriage to actor Gene Wilder and her life with cancer, Radner made me laugh and cry while confirming the need for peer support and devoted caregivers.
Radner did not have breast cancer (she had ovarian cancer), yet her statements reminded me that I was not alone in my cancer journey, especially statements like these:
“Still, even after a lovely dinner, I came home in my new clothes and felt depressed. When I took off my outfit, there was my bald head. I was still a cancer patient. I was different.”
“Ooh, I hate this, I want to run away, let me get out of this.”
Radner’s overarching message is, “Never give up.” She faced her cancer head-on, dealt with the changes and fears that came her way, and then was brave enough to share her story. If you want validation of your cancer journey, this is the book to read.
- Ronda Walker Weaver
Tuesday, October 29, 2013
Oct. 29 - Future Telling
There are days when I am homesick for my chemo and hydration days. Life was simple then. No decisions - wake up, go to the gym, shower, put on some comfy clothes and a little makeup, find a hat, go to the oncology lab, be hooked up, sit, sit, sit, go home, sick, sick, sick, sleep, sleep, sleep. Write in my blog, wake up, do it all over again. Work a little, visit a little, read a little, listen to lots of music. No choices, no options, no energy. All of my energy was going to staying alive, and Scott and others took care of any extras. Yet I can't begin the amount of work and energy this took.
Even when I hurt my back, my days were simplified - acupuncture, heat, sit a little, stand a little, rest a little, work. My choices were limited by my energy and ability level.
These days - so many options! Including - should I rest or play with a grandchild. Should I say "yes," and try to juggle, or say "no," and feel bad/good that I did so? Should I ignore and see if it resurfaces down the road? Should I give it my "new" best or the best of others' expectations? Just what are my expectations? What do I let slip by, what do I make a priority? Do I attend this seminar,or stay home and quilt/sleep/watch a movie?
It is nice to know I'm not the only post-treatment woman who has these concerns. What do I put back on my plate, what do I leave off, what do I remove, what new do I add?
I am blessed to be given this tabula rasa - how often in life are we given the opportunity to start over, again? Although I'm still limited by energy, there are so many options for me these days. I'm learning to take things slowly and methodically, weighing, balancing, pulling out my glass ball and looking into the future.
Even when I hurt my back, my days were simplified - acupuncture, heat, sit a little, stand a little, rest a little, work. My choices were limited by my energy and ability level.
These days - so many options! Including - should I rest or play with a grandchild. Should I say "yes," and try to juggle, or say "no," and feel bad/good that I did so? Should I ignore and see if it resurfaces down the road? Should I give it my "new" best or the best of others' expectations? Just what are my expectations? What do I let slip by, what do I make a priority? Do I attend this seminar,or stay home and quilt/sleep/watch a movie?
It is nice to know I'm not the only post-treatment woman who has these concerns. What do I put back on my plate, what do I leave off, what do I remove, what new do I add?
I am blessed to be given this tabula rasa - how often in life are we given the opportunity to start over, again? Although I'm still limited by energy, there are so many options for me these days. I'm learning to take things slowly and methodically, weighing, balancing, pulling out my glass ball and looking into the future.
Monday, October 28, 2013
Oct. 28 Daddy's Girl -
The phone is ringing. It's too early for a conversation. That means one thing - something has happened to my next-door neighbor. I walk to the kitchen, not even awake, and answer. It's my mom. "Everything's OK. Your dad has crumpled by the side of the bed, can Scott come help me get him back into bed?" "Yes." And I wiggle Scott, soundly sleeping, and ask him to go help Mom. He does. I look at the clock, 6:15am. Too early for a Sunday. Scott comes home, we go back to sleep.
8:15am. The phone rings. It's my mom. "Tyler's here. Can Scott and you help me get your dad down to the hospital?" "Sure, now?" "I want to shower first, in 30 minutes." So I hop into the shower, quickly dress. Scott takes his turn, and we run next door to determine how our day's happenings.
I love, love, adore, my dad. He's 83. He water-skied until he was 75 years old. He's always been busy - and he's taught his children how to be hard workers. He always hated seeing us sitting. He'd make us work hard then play hard with us. He's a demanding father. When he wants a project done, he means "now, not tomorrow, not next year, now. Hop to it." From him I've learned how to be bossy, demanding, and a hard worker - "Get off your butt and do something besides complain!" From him I've also learned how to be honest - "If I ever catch you in a lie . . .", sincere - "I love you," and generous - "We are blessed. I need your help (usually right now) to weed/mow Sister, or Brother so and so's yard/garden." I've also learned to be organized - "Put it where it belongs, now." And my dad is devoted - to his wife, his church, his God, his family. He's also a great cook - "Taste this, tell me what you think,"and a great craftsman. He taught me, "Give it a try, what's the worst that could happen?" And he taught me how to use his tools without any gender issues, at all. Dad doesn't hold grudges, "Forgive and forget," and he believes in acceptance - "You don't have to approve, but you do have to accept."
He loves having his children around, and more than that, he loves having his grandchildren and great-grandchildren visit him. He speaks lovingly and positively about them. He's usually the first to give a grandchild ice cream, always wanting to hold and hug and smooch with them, and he gives and receives hugs and tons of smiles and laughs.
His health hasn't been the best these past 4 years. He has 15 stents, a pacemaker, neuropathy in his feet, shortness of breath from congestive heart failure, and a bad back, and today, pneumonia. He hasn't let that stop him from being MY daddy. This past year he has checked on me almost daily, walking over with his walker (a Walker walking with a walker), knocking on the back door, and then, not waiting for an answer, wandering on inside, talking as he makes his way to wherever I'm at. There have been times when I've had to shoo him away because I was getting dressed or in a meeting, but for the most part, he has a bit of news to share, something he wants me to read, or "I haven't seen you for a couple of days, are you alive?" "I need you to . . ." or "When will Scott be home, I need him to . . ." He's said to me, more than once, "How is work?" "How is class going?" And even, "Your mom won't let me drive, but I can come and sit with you if you ever need me to."
I've learned a lot about him during the past 2 years. My pains have taught me about his pains, and he has taught me how to handle them. He may have chronic pain, a lifetime's worth of pursuit of a perfect night's rest, and he does his share of complaining about those aches. But - he doesn't talk bad about people, doesn't blame God or anyone else for the life he has. I haven't seen him grumble, wonder or "why me." He makes time for us kids, and he has taught me how to make time for others.
He's a good man. Today when the doctor asked Dad if he had a living will and a DNR and DNI order, Dad replied, "Do it all. Keep me alive as long as you can." I teared up a little and sent those same words to heaven, "Do it all. Keep my daddy alive as long as You can."
8:15am. The phone rings. It's my mom. "Tyler's here. Can Scott and you help me get your dad down to the hospital?" "Sure, now?" "I want to shower first, in 30 minutes." So I hop into the shower, quickly dress. Scott takes his turn, and we run next door to determine how our day's happenings.
I love, love, adore, my dad. He's 83. He water-skied until he was 75 years old. He's always been busy - and he's taught his children how to be hard workers. He always hated seeing us sitting. He'd make us work hard then play hard with us. He's a demanding father. When he wants a project done, he means "now, not tomorrow, not next year, now. Hop to it." From him I've learned how to be bossy, demanding, and a hard worker - "Get off your butt and do something besides complain!" From him I've also learned how to be honest - "If I ever catch you in a lie . . .", sincere - "I love you," and generous - "We are blessed. I need your help (usually right now) to weed/mow Sister, or Brother so and so's yard/garden." I've also learned to be organized - "Put it where it belongs, now." And my dad is devoted - to his wife, his church, his God, his family. He's also a great cook - "Taste this, tell me what you think,"and a great craftsman. He taught me, "Give it a try, what's the worst that could happen?" And he taught me how to use his tools without any gender issues, at all. Dad doesn't hold grudges, "Forgive and forget," and he believes in acceptance - "You don't have to approve, but you do have to accept."
He loves having his children around, and more than that, he loves having his grandchildren and great-grandchildren visit him. He speaks lovingly and positively about them. He's usually the first to give a grandchild ice cream, always wanting to hold and hug and smooch with them, and he gives and receives hugs and tons of smiles and laughs.
His health hasn't been the best these past 4 years. He has 15 stents, a pacemaker, neuropathy in his feet, shortness of breath from congestive heart failure, and a bad back, and today, pneumonia. He hasn't let that stop him from being MY daddy. This past year he has checked on me almost daily, walking over with his walker (a Walker walking with a walker), knocking on the back door, and then, not waiting for an answer, wandering on inside, talking as he makes his way to wherever I'm at. There have been times when I've had to shoo him away because I was getting dressed or in a meeting, but for the most part, he has a bit of news to share, something he wants me to read, or "I haven't seen you for a couple of days, are you alive?" "I need you to . . ." or "When will Scott be home, I need him to . . ." He's said to me, more than once, "How is work?" "How is class going?" And even, "Your mom won't let me drive, but I can come and sit with you if you ever need me to."
I've learned a lot about him during the past 2 years. My pains have taught me about his pains, and he has taught me how to handle them. He may have chronic pain, a lifetime's worth of pursuit of a perfect night's rest, and he does his share of complaining about those aches. But - he doesn't talk bad about people, doesn't blame God or anyone else for the life he has. I haven't seen him grumble, wonder or "why me." He makes time for us kids, and he has taught me how to make time for others.
He's a good man. Today when the doctor asked Dad if he had a living will and a DNR and DNI order, Dad replied, "Do it all. Keep me alive as long as you can." I teared up a little and sent those same words to heaven, "Do it all. Keep my daddy alive as long as You can."
Friday, October 25, 2013
Oct. 25 - Tell Me Lies, Tell Me Sweet Little Lies - NOT
Don't lie to me. Don't tell me what you think I want to hear. Don't tell me white lies. Don't flower me with dishonest praise. Don't lead me on with words of half truths and false promises. Don't pacify me, don't mollify me, don't play me.
Tell me the truth, and give it to me straight. Tell me honestly. I want the facts, support, and then, perhaps, a little emotion.
I can't be bought, I won't be sold on rhetoric. Words without actions are dead.
Amen -
Tell me the truth, and give it to me straight. Tell me honestly. I want the facts, support, and then, perhaps, a little emotion.
I can't be bought, I won't be sold on rhetoric. Words without actions are dead.
Amen -
Thursday, October 24, 2013
Oct. 24 - one more post about HAIR!
A year ago this week I began losing my hair. My scalp began hurting, as well as other hair-baring places on my body, and slowly I began to find body hair in the shower, then head hair. I got onto a forum for women with breast cancer (MyBCTeam), and I asked about this pain. The answer was this was the beginning of hair follicles dying. One of the ways to ease this pain was to shave my head, now. This would also lessen the amount of hair I would be picking up from the places I laid my head.
I know I've posted about my hair multiple times, but if a woman's hair is her crown, then losing her hair is a dunce cap. Or better yet, losing one's hair is a sign of disease, illness, cancer.
I haven't posted these pictures before, so I will. I'm also posting this video, to show the metamorphosis of removing hair (I'm not a fan of the battle terminology, but the video is striking). As I watched this video, I remember the pain, the ache, the finality of this act.
However - life does go on! My hair is back, and there are times when I think, "If I was 25 and 125 pounds, I just might have shaved my head."
I know I've posted about my hair multiple times, but if a woman's hair is her crown, then losing her hair is a dunce cap. Or better yet, losing one's hair is a sign of disease, illness, cancer.
I haven't posted these pictures before, so I will. I'm also posting this video, to show the metamorphosis of removing hair (I'm not a fan of the battle terminology, but the video is striking). As I watched this video, I remember the pain, the ache, the finality of this act.
However - life does go on! My hair is back, and there are times when I think, "If I was 25 and 125 pounds, I just might have shaved my head."
Barb was 28 years old when diagnosed with breast cancer in 2011.
My haircut process -
Wednesday, October 23, 2013
Oct. 23 - On Being Good -
On Being Good, and Being Remembered -
I am an impatient person - although I have patience. I am not
necessarily one to wait for something to happen, rather, I prefer making
the something happen. And I'm OK with that, mostly. However, sometimes
in my rush to making things happen, I stumble, trip, fall flat on my
face, offend - hence, I need to be patient, be still. I am
learning. And Cancer has taught me how to wait -
With
that all said, my deepest desires are just to be a good person. In my morning meditations, I read this scripture from Acts 10:38 -
"[He] went about being good." That's what I want to be said about me
now and when I'm gone. Perhaps I can be worthy of this as an inscription
on the wooden vase holding my ashes. In the meantime, can my daily
actions, and in-actions for that matter, be a shining example of this? I
hope so.
On my office wall I have the following thoughts:
"I will not let individuals or circumstances affect my behavior."
"Seek first to understand rather than to be understood." St. Francis of Assisi
"Sometimes your only available transportation is a leap of faith." Margaret Shepherd
These are daily reminders to me that I must be about doing good, patiently. What about you? Quotes, motivational sayings, thoughts, scriptures - what keeps you centered, and - what do you want inscribed on your urn or headstone?
With
that all said, my deepest desires are just to be a good person. In my morning meditations, I read this scripture from Acts 10:38 -
"[He] went about being good." That's what I want to be said about me
now and when I'm gone. Perhaps I can be worthy of this as an inscription
on the wooden vase holding my ashes. In the meantime, can my daily
actions, and in-actions for that matter, be a shining example of this? I
hope so.On my office wall I have the following thoughts:
"I will not let individuals or circumstances affect my behavior."
"Seek first to understand rather than to be understood." St. Francis of Assisi
"Sometimes your only available transportation is a leap of faith." Margaret Shepherd
These are daily reminders to me that I must be about doing good, patiently. What about you? Quotes, motivational sayings, thoughts, scriptures - what keeps you centered, and - what do you want inscribed on your urn or headstone?
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